Lost in Thyme

Lost in Thyme Below are the 10 most recent journal entries recorded in the "jjschwabach" journal:

May 12th, 2012
04:21 pm [Link]	Walk I have a new leg brace. To those who wonder what that means, I have one leg that does not function at all. No tibia, not much of a fibula, but we like it anyway, because it works its darnested despite being twisted, broken, ending up in another place, broken, bruised etc... Tiny foot, no ability to turn ankle, but the Fibula has a falls join to conjure with, and we having even gotten to the tiny thing that is a scapula. Femur is the hero, because it (so far) has never broken or dislocated. But there is no full attachment as I don't have anything that can lock into the top. Nothing to allow one to make a full hip. So, yes, when I say brace, I mean below to the very top of the world... well, the full length of the leg. And support at about 95%. But this one is beautiful, because, butterflies. Current Mood: jubilant Tags: legs, pretty. butterfly (8 comments \| Leave a comment)
May 8th, 2012
08:07 pm [Link]	It was a sad day today.... and really... You made my heart sing… You made my heart sing… Like a magical wild thing… …or in the Night Kitchen, depending… Sorry I don't have an actual proper character for Mr. Sendak Current Mood: depressed Tags: sad (4 comments \| Leave a comment)
April 27th, 2012
03:55 pm [Link]	wow,,, I apologies. I've been off in weirdsvill. I'm all right. Just have to do this, and that and the other thing. I will let people know more when something needs thinking about... Current Mood: tired Tags: not-so-missing people (1 comment \| Leave a comment)
March 21st, 2012
08:06 pm [Link]	Trip was made... For treatment, regular Avastan day, not much else on that, though my doc did sign off on my state taxes because though the Feds were perfectly happy that I had proved that I was disabled now, and not getting a good job money anymore, the State had trouble with the idea. So Dr. McCoy wrote it out very simply for them. So we hope they accept it now... Other than that, I enjoyed what there is of Spring at the moment... Current Mood: giddy Tags: cancer, doctors, taxes (4 comments \| Leave a comment)
March 8th, 2012
04:44 pm [Link]	Got a clean bill of health from McCoy... Okay, really, that is obviously not his name, and it's more a Optimistic Look than a "Fix!" look. He was worried from the first look at me that I was going to be one of his "bad cases" who die within 11 months of first seeing him. Let's go back over his seeing me: I was diagnosed with Type 4 Glioplastoma on December 7th, 2010. This was done in the Strong Memorial ER. They got the hospital's best brain surgeon on the line, and because I was not going to die over night, but on Christmas, he wasn't allowed to push anyone aside and get their time in the OR, so I was operated on on December 9th. I got to live there for 9 days total. I came home for a couple of days then went back for a conference about the plans they had. And to meet Dr. Not McCoy, who was very worried about me because prior to surgery everyone thought I was going to die on Christmas, which even for those who do not follow it, is very unpleasant. After getting a lot of treatment, at about September 22, I needed another surgery, but not as bad. What worried Dr. McCoy was that this was the time line where he usually lost people. He was almost smiling, because a bit past the 4 month mark, he sees no tumors! Still have to go on with the current treatment, because he doesn't want to Jinx anything, but for now, he is cautiously optimistic. Current Mood: thankful Tags: cancer, doctors, glioblastoma, treatment (22 comments \| Leave a comment)
January 25th, 2012
08:09 pm [Link]	What have I seen? Well, I saw Dr. ___. and he is somewhat heartened by my recent MRI, following the day of Badness on the 7th. I am not allowed to drive and do not need to worry about much cancer right now, but also brain slower and that will take a while to get better. Big problems now are going places and getting good food, though the second, there are a few good places around if you can, er, drive to them. Which I can't... Argh. Who lives near Hammondsport, NY? (Hint: it's in the Finger Lakes, aka middle of nowhere.) Hmmm... I'm not so coherent, either, which suggests too long a day was had... Current Mood: discontent Tags: cancer, mri, treatment (11 comments \| Leave a comment)
January 13th, 2012
05:45 pm [Link]	Okay, like I told people... Some people are aware this was a Bad Week to start with. This past weekend, I got very far off, some sort of seizures, they said. Getting better again, but had a very bad weekend. The good news is that I, OTOH, had a great MRI on Wednesday. They were really worried that I would have a bad one, because of the probably seizures. But it was clear, clean and lovely. They said. They were very happy with it. Unfortunately, the big plans my cousin had put together are shot. No way can I get on a plane now. Even if the Docs weren't rescinding their agreement to the plan, the plane folks wouldn't allow me to. And, as no one would have guessed (right!) weight down again. 117. I think I remember it as 50 kilograms? And down we go... Also some brain slow still. Not my lifetime plan. Current Mood: lethargic Tags: brain, brain cancer, mri, seizures (7 comments \| Leave a comment)
December 31st, 2011
08:05 pm [Link]	another year over, and a new one begun... Ah, the late Mr. Lennon. H always knew what we wanted to say... ...Let's hope it's a good one Without any fear Current Mood: calm Tags: hope, new year, peace (5 comments \| Leave a comment)
December 25th, 2011
06:52 pm [Link]	another year over, and a new one begun... Well, soon enough... Well, I got approved for disability from the government and work, so while I've not got as much coming in a month as when I could work, but I can manage. I still go to treatments once every 14 days. New medicines, new this, new that... But I am still alive, so we like that... I hope everyone is having a good holiday! Current Mood: happy Tags: happy meme (12 comments \| Leave a comment)
December 7th, 2011
04:45 pm [Link]	365 days... Today is the day I went to Rochester, a year ago. Where I ended up in their ER instead of the appointment I actually had, December 7th,2010, is when they found out I had a brain tumor. At the time, as some will remember, I was expected to live another two and a half weeks. Yeah. The staff hated that counting, too. Kept walking on egg shells around me. On the 9th of December last year was when I had the emergency surgery. Of course, I had to have a second surgery this past September. But right now, things seem all right. We keep our fingers crossed. Of course, is not my new birthday, that would be the 9th, because that is the day of the Doctor who walked in like well-trained wizard. Current Mood: hopeful Tags: brain cancer, cancer, hope, neurosurgery, treatment (12 comments \| Leave a comment)

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